The Story of Nicholas' Early Arrival: Doing well on IMV

Thursday, January 15, 2009

Doing well on IMV

Much more comfortable on IMV

Nicholas had another good day. He is doing good on the IMV. He is at a rate of 30 breaths per minute and was around 28% oxygen today. He looked more comfortable with all the tubes and straps that are on his head and face today.

He has had good urine output and stools today. It is also his last day on Lasix. They took a long time to wean him off of it so hopefully he will continue to have good urine output without it.

His feeds were increased to 5ml an hour and he has been tolerating them well. They reduced his dose of hydrocortizone a little to.

He was doing so good that Mommy got to hold him for almost an hour today. He slept most of the time and didn't have any de-sats.

4 comments:

Aunt Heather :)January 15, 2009 at 8:59 PM
What a great day! I'm so happy to hear that Nicholas is continuing to do well and that you got to hold him again.
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Grandma TerriJanuary 15, 2009 at 10:18 PM
Lookin' good. As we approach a new Chinese Year, let's not forget he, like me and Jacy, were born in the Year of the Rat. Go Nicholas! Watch those dragon parades!!!!!!!
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Grandma TerriJanuary 15, 2009 at 10:20 PM
You can probably figure out it was Stan who posted the above comment but my computer thought it was me.
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UnknownJanuary 16, 2009 at 12:00 AM
Oh,Corinne, he looks so good! I'm so glad you got to hold him so long today. Kisses for Nick! Anita
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Preemie Experience

The Preemie Experience
The preemie experience is the shattering of all your dreams
For a normal, healthy delivery,
Of the ability to carry home a beautiful squirming bundle
After a short stay in the hospital.
It is lying there in your hospital room listening to
The happy sounds of whole families joined
Together by the birth of a grandchild, cousin, niece,
or nephew, and knowing that your
Child is miles away and may not survive long enough
For you to see or simply touch.
It is that first glimpse of a skinny, scrawny, not much bigger
Than a Barbie doll child
And feeling, fear, awe, and joy for such a fragile soul.
It is sitting by your baby’s “bedside” day after day,
Week after week, month after month,
Alternating between the emotional high of “Look, his eyes are open,” or “he’s crying!”
And the lows of “I’m sorry, something has shown up in the ultrasound,”
Or even “There is nothing we can do…”
It is hearing the alarms go off for the twentieth time in less
Than fifteen minutes because your
Child’s heart rate keeps hitting zero.
It is watching children dying around you, wondering if
Your child will be next.
It is hearing your child’s cry of distress as the nurses
Insert yet another IV and do another
Round of daily blood tests.
It is meeting other parents of children who are doing far better
And wondering, “Why me?”
And meeting parents of children who have just died,
And praising God for His mercy
To your child and feeling guilty because your child is alive
And someone else is grieving for theirs.
It is days of nightmarish testing and coping with less
Than positive results to the tests.
It is days of joy at seeing the first eyelash appear,
The child gain a whole ounce in one day,
And two bright shiny eyes look at you and into your soul,
And knowing that your child now recognizes you as Mama or Dada;
Or perhaps looks at you and does not see you at all…
It is that final hurdle before coming home!
It is the sorrow of waiting for the monitor company Representative to show you what to do
If the alarm sounds when your child is choking,
Gasping for breath, or simply dying.
It is the joy of just being away from all those nurses
And tubes and wires and beeps, and
Walking into the nursery you hastily prepared because,
after all,
The child wasn’t due for another four months!
It is thinking the nightmare is over…only to realize it still Continues in the form of
Such acronyms as PVL, RSV, BPD, CP and numerous others.
It is the final realization that those developmental delays
Have to be dealt with,
That reflux is a normal and unfortunate
occurrence in most preemies,
That the constant fight to gain weight is in direct proportion
To a preemie’s ability to do so.
It is watching a child struggle to pick up his or her head, sit, Crawl, or walk.
It is witnessing only silence when the child should be babbling,
Because the child cannot hear.
It is the mental images of a child running and playing
And communicating with others in a
Perfectly normal manner that are marred when you face years of therapy
In order to simply get the child to eat by himself or herself,
To talk or walk and then run.

The preemie experience is a journey…A journey through your soul in order to find the faith and strength to cope,
A journey of the mind when you face the emotional weariness,
A journey of the heart…to accept that, no matter what,

This child is yours,
And you will love this child no matter what.

The Story of Nicholas' Early Arrival

Thursday, January 15, 2009

Doing well on IMV

4 comments:

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