The Story of Nicholas' Early Arrival: Eyes Look Good

Wednesday, June 24, 2009

Eyes Look Good

Nicholas had an appointment with the retina doctor yesterday. He said his eyes look good (ROP). He is released from that doctor and we have an appointment with a regular eye doctor next month. Just because the ROP looks good doesn't mean his eyesight is good. Preemies have a lot of vision problems so he may still have eye issues. Not much has been going on. We are still waiting on physical therapy to start. We are doing a little bit of stage 1 foods. He is ok with fruits but still doesn't enjoy the beginning of the feeding. Once he realizes it tastes good he is ok. His thumb is his favorite thing. He gets mad if he takes it out of his mouth and then when he finds it and puts it back in he is good. Silly boy.

1 comment:

The Adventures of DJ and KatelynJune 24, 2009 at 8:08 PM
Glad to hear he gets to go to a regular eye doc. I know DJ was suppose to have an appt, but things got screwed up. Still no PT. We are starting over, so it may be awhile again. It really sucks. Our PT was from Health Tracks. Our EI is from Healthy Start, we like her. She is here every week. DJ is the same with food, also with thumb....I love it. I think they are so cute with their little thumbs in their mouths. I take it as a great milestone. There is not much that they are able to do, and each and every little thing is amazing.
I loved the father day pic and the little cubs gnome....so cute. I am glad Nicholas is doing well. I also loved he had no machines hooked up in that photo. I hope PT and everything else starts up soon. Take Care...TTYL!!!
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Preemie Experience

The Preemie Experience
The preemie experience is the shattering of all your dreams
For a normal, healthy delivery,
Of the ability to carry home a beautiful squirming bundle
After a short stay in the hospital.
It is lying there in your hospital room listening to
The happy sounds of whole families joined
Together by the birth of a grandchild, cousin, niece,
or nephew, and knowing that your
Child is miles away and may not survive long enough
For you to see or simply touch.
It is that first glimpse of a skinny, scrawny, not much bigger
Than a Barbie doll child
And feeling, fear, awe, and joy for such a fragile soul.
It is sitting by your baby’s “bedside” day after day,
Week after week, month after month,
Alternating between the emotional high of “Look, his eyes are open,” or “he’s crying!”
And the lows of “I’m sorry, something has shown up in the ultrasound,”
Or even “There is nothing we can do…”
It is hearing the alarms go off for the twentieth time in less
Than fifteen minutes because your
Child’s heart rate keeps hitting zero.
It is watching children dying around you, wondering if
Your child will be next.
It is hearing your child’s cry of distress as the nurses
Insert yet another IV and do another
Round of daily blood tests.
It is meeting other parents of children who are doing far better
And wondering, “Why me?”
And meeting parents of children who have just died,
And praising God for His mercy
To your child and feeling guilty because your child is alive
And someone else is grieving for theirs.
It is days of nightmarish testing and coping with less
Than positive results to the tests.
It is days of joy at seeing the first eyelash appear,
The child gain a whole ounce in one day,
And two bright shiny eyes look at you and into your soul,
And knowing that your child now recognizes you as Mama or Dada;
Or perhaps looks at you and does not see you at all…
It is that final hurdle before coming home!
It is the sorrow of waiting for the monitor company Representative to show you what to do
If the alarm sounds when your child is choking,
Gasping for breath, or simply dying.
It is the joy of just being away from all those nurses
And tubes and wires and beeps, and
Walking into the nursery you hastily prepared because,
after all,
The child wasn’t due for another four months!
It is thinking the nightmare is over…only to realize it still Continues in the form of
Such acronyms as PVL, RSV, BPD, CP and numerous others.
It is the final realization that those developmental delays
Have to be dealt with,
That reflux is a normal and unfortunate
occurrence in most preemies,
That the constant fight to gain weight is in direct proportion
To a preemie’s ability to do so.
It is watching a child struggle to pick up his or her head, sit, Crawl, or walk.
It is witnessing only silence when the child should be babbling,
Because the child cannot hear.
It is the mental images of a child running and playing
And communicating with others in a
Perfectly normal manner that are marred when you face years of therapy
In order to simply get the child to eat by himself or herself,
To talk or walk and then run.

The preemie experience is a journey…A journey through your soul in order to find the faith and strength to cope,
A journey of the mind when you face the emotional weariness,
A journey of the heart…to accept that, no matter what,

This child is yours,
And you will love this child no matter what.

The Story of Nicholas' Early Arrival

Wednesday, June 24, 2009

Eyes Look Good

1 comment:

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