Sunday, December 27, 2009
Friday, December 18, 2009
Thursday, December 17, 2009
Hello everyone. This is Dad. I don't really talk much, my wife is the one that does the great work to keep the blog up to date. Earlier this evening, Corinne and I were reminiscing the past year and everything our son Nicholas has been through. Anyone that knows me, knows how proud I am of my son, and how much I love him. We have been through hell in the NICU with Nick and we made it. This is a little message to all my fellow premature parents struggling to keep the faith, and their sanity
I am writing today to I guess give a message of inspiration of hope, and never giving up. From previous posts I am sure you have seen everything our son Nick has been through. It has been a really hard year but we pulled through. I remember the countless hours in the NICU, loss of appetite, headaches from worrying so much, the endless nights of not sleeping, or falling asleep next to his isolete. Once I even fell out of my chair after I feel asleep, and hit my head on the isolete stand. So many doctors and nurses talking to me I lost track of who did what. For those of you that have a child, or children in the NICU just know you are not alone and your child needs you more than ever. Nick was given slim chance of living and has had a few close calls. From given 72 hours to urinate, and stabilize his blood pressure, to flatlining. Ten surgeries, being deaf, chronic lung disease, perforrated intestines, category 4 brain bleed, and the list goes on. There were times I almost gave up hope, but everytime I saw him I knew I had to keep fighting and never give up hope. SO DO YOU. NEVER GIVE UP!
I think finding out he was deaf was the hardest thing. I mean, "Why Us?" What did we do to deserve our son to be this sick, and have these problems. Never have my emotions been put to the extreme test than learning our son was deaf. We all live in this perfect bubble thinking that this will never happen, but when it does it is how you deal with it is what makes you stronger than ever.
I have become a huge supporter for disabled children from all aspects. Seeing children in the NICU without parents that cared enough to show up, or even acknowlege their child will literally make you sick to your stomach. Yes, a lot of babies NEVER get visitors. I can't fathom what that must be like to not have a soul and abandon your child. Ugh! That makes me sick to my stomach.
For the parents just beginning the NICU experience, or that have been there a while and just need a little inspiration, allow me to say, "I do not know if everything will be O.K. I do not know what the long term effects of your baby my be. I do not know what will happen. " I do know that you must never give up. NEVER GIVE UP! I know you are tired from working all day, or all night, then having to make that drive to the hospital....DO IT! DO NOT always listen to the Doctor's when they tell you what horrible things that may happen to your child. It is their job by law to give full disclosure, and some have terrible bed side manner. Read to your child, touch your child, let your child know you are there. Most important...DO NOT give up hope. I know you have those days where all the other children are doing great and yours is doing horrible. That was us most of the time. almost every week we got bad news.
Also know this. When your child makes it home you will know so much about the care of premature children, and operating the machines you are ready to start working in the NICU. I guess I will quit rambling. the words didn't come out the way I wanted, but I just wanted to give a message of hope. Even when your child gets home that is even more important than the NICU. You may have endless doctor appointments like we do, and constant fights with the insurance companies. It will not be easy. It will be 10 times harder than a normal baby. You will get tired, frustrated, and discouraged at times. DO NOT GIVE UP! You will be amazed what you can do.
Thank you for reading my unorganized babble. I just want to give back and help those who are where we once were. DO NOT GIVE UP, and BELIEVE!!!!!