Wednesday, October 27, 2010

Monday, October 25, 2010

Long Time, No Post

The past few weeks have been pretty routine. Nick has has PT, OT, and Speech. He is doing well in all of them and showing slow progression. The corner chair that his OT ordered finally came in. It is a neat little chair and will allow him to sit supported and play. He went to the allergy doctor last week. He didn't retest for allergies because he wants to wait a year from the first test which will be next summer. He did say that his skin is really dry and he is at high risk for Eczema because of his food allergy. So he recommended lotion and cleanser to use on him. He has had a few patches of weird looking dry skin so hopefully the Eczema lotion will help. We hope to make it to the pumpkin patch this week to take pictures. We haven't had a time during the day on the weekends when we can all go. This week he has a port flush and a brain CT. It is a routine CT for his six month visit with the neurosurgeon. He has a big birthday coming up.
Maybe he will be interested in the cake this year. I found a gluten free cake mix that doesn't have milk in it. Hope it is good.

Monday, October 11, 2010


Nicholas had his first dentist appointment last week. I really had no idea what to expect and even thought he might have to be sedated, but no sedation and it was better than expected. They had me sit in the dental chair and hold him on my chest. The first thing the dentist asked when she saw his teeth was if he takes vitamins with iron. He does. She thinks the discoloration is all stain from his vitamins and that she can get it off over time. We mix the vitamins with his food but they still stain his teeth. She was able to do a quick cleaning. It was just like the cleanings we get with the little cup of paste and the spinny brush. He actually made happy noises during that, probably tickled him. The she scrapped a little and he was done. The screaming started so she stopped but got in a fluoride treatment. She wants him to come back in three months to do some more. His front teeth already look so much better. We can use kids toothpaste with fluoride instead of baby toothpaste. It isn't easy brushing his teeth but we try.

He also had an appointment with the gastroenterologist . He weighed 20 lb, 5 oz and they measured him at 32 inches. The doctor is happy with his weight gain and ordered an ultrasound of his gallstone. He is scheduled to get the Synagis shot again this year. I didn't think he would qualify but the pulmonologist's office said he does. His first shot it at the end of the month.