The Story of Nicholas' Early Arrival: Discharge Postponed

Monday, April 13, 2009

Discharge Postponed

Nicholas' discharge is being postponed for a little while. He had a bad spell during his MRI and coded. He stopped breathing and his heart stopped. They were able to bring him back with oxygen and chest compressions. This was a reaction to the Chlorohydrate they gave him to sedate him during the MRI. He got so relaxed he forgot to breathe. They are going to ask the Neurosurgeon if he absolutely needs the MRI before discharge. If he does, they will have to decide if they will use Chlorohydrate again or if they can come up with a different drug to use. Once they got him back he was fine and has been fine all day. They took 2 blood gases and those were fine and he is already back to 1/4 liter of oxygen. They also did a CBC but don't feel that it will show anything wrong. So now it will probably be next week before he is home. On a better note, his eyes look good and the ROP is still regressing. I forgot to bring the camera so no new picture.

4 comments:

JCMatthewsApril 13, 2009 at 10:28 PM
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UnknownApril 13, 2009 at 11:51 PM
Corrine and Mark, I'm sorry to hear Nicholas had a setback today. Prayers contiue for all of you. On another note, besides keeping us informed of Nicholas' progress, I believe this blog should be used to support Corinne, Mark and Nicholas. Let's keep our focus on that.
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The Adventures of DJ and KatelynApril 14, 2009 at 12:05 AM
Oh sweetie....BIG {{{{HUGS}}}} to you guys!!!
As always you three are in our thoughts and prayers!!!
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KaytienKysmommaApril 14, 2009 at 11:29 AM
Oh Man! I hate to hear about the set back. ((hugs))) to you all. I will keep you all in my thoughts and prayers.
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Preemie Experience

The Preemie Experience
The preemie experience is the shattering of all your dreams
For a normal, healthy delivery,
Of the ability to carry home a beautiful squirming bundle
After a short stay in the hospital.
It is lying there in your hospital room listening to
The happy sounds of whole families joined
Together by the birth of a grandchild, cousin, niece,
or nephew, and knowing that your
Child is miles away and may not survive long enough
For you to see or simply touch.
It is that first glimpse of a skinny, scrawny, not much bigger
Than a Barbie doll child
And feeling, fear, awe, and joy for such a fragile soul.
It is sitting by your baby’s “bedside” day after day,
Week after week, month after month,
Alternating between the emotional high of “Look, his eyes are open,” or “he’s crying!”
And the lows of “I’m sorry, something has shown up in the ultrasound,”
Or even “There is nothing we can do…”
It is hearing the alarms go off for the twentieth time in less
Than fifteen minutes because your
Child’s heart rate keeps hitting zero.
It is watching children dying around you, wondering if
Your child will be next.
It is hearing your child’s cry of distress as the nurses
Insert yet another IV and do another
Round of daily blood tests.
It is meeting other parents of children who are doing far better
And wondering, “Why me?”
And meeting parents of children who have just died,
And praising God for His mercy
To your child and feeling guilty because your child is alive
And someone else is grieving for theirs.
It is days of nightmarish testing and coping with less
Than positive results to the tests.
It is days of joy at seeing the first eyelash appear,
The child gain a whole ounce in one day,
And two bright shiny eyes look at you and into your soul,
And knowing that your child now recognizes you as Mama or Dada;
Or perhaps looks at you and does not see you at all…
It is that final hurdle before coming home!
It is the sorrow of waiting for the monitor company Representative to show you what to do
If the alarm sounds when your child is choking,
Gasping for breath, or simply dying.
It is the joy of just being away from all those nurses
And tubes and wires and beeps, and
Walking into the nursery you hastily prepared because,
after all,
The child wasn’t due for another four months!
It is thinking the nightmare is over…only to realize it still Continues in the form of
Such acronyms as PVL, RSV, BPD, CP and numerous others.
It is the final realization that those developmental delays
Have to be dealt with,
That reflux is a normal and unfortunate
occurrence in most preemies,
That the constant fight to gain weight is in direct proportion
To a preemie’s ability to do so.
It is watching a child struggle to pick up his or her head, sit, Crawl, or walk.
It is witnessing only silence when the child should be babbling,
Because the child cannot hear.
It is the mental images of a child running and playing
And communicating with others in a
Perfectly normal manner that are marred when you face years of therapy
In order to simply get the child to eat by himself or herself,
To talk or walk and then run.

The preemie experience is a journey…A journey through your soul in order to find the faith and strength to cope,
A journey of the mind when you face the emotional weariness,
A journey of the heart…to accept that, no matter what,

This child is yours,
And you will love this child no matter what.

The Story of Nicholas' Early Arrival

Monday, April 13, 2009

Discharge Postponed

4 comments:

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