Tuesday, May 12, 2009

Good news

Nicholas had his appointment with the pulmonoloist today. They hooked him up to a pulse ox and he was satting at 98. The doctor told us his lungs sound really good and we can turn his oxygen to 1/16 of a liter. We go back in a month and if he is satting in the high nineties he will discontinue the oxygen. He will have the apnea monitor for about a month more than the oxygen. He is having the equipment company come out and change the settings on the monitor. They are currently at 70 bpm for bradycardia and 15 seconds for apnea. He is going to have it changed to 60 bpm and 20 seconds. We only had one alarm since his shunt revision and it was a brady. The doctor said that because of his size and my due date he is old and big enough that his heart rate will naturally drop into the 60's when he is sleeping.

The hearing test was inconclusive. The machine couldn't get a reading. They think he has fluid in his ears and that is why they couldn't get a reading. The audiologist said that it is common for babies to have fluid in their ears but not have an infection because they are laying down a lot. So now we have to go back in 2 weeks and do a brain stem test. They will put electrodes on him and read the brain waves. He has to be asleep for this and they said to keep him up late and wake him up early for 3 days before the test. I don't think this is going to be easy but we will have to wait and see.

The swelling where his stitches were has gone down a lot today but not completely. We also visited the NICU and saw his primary nurse and nurse practitioner and several other nurses who took care of him. It was nice to see the people that made such a difference in our little guy's life.


  1. I am so glad he is doing well. I love all the toys on his arms. I do that to DJ, also. He has on wrist rattles most of the day, all for therapy.
    I also love the pic from the Zoo. We keep talking about going, but yet to go.
    TAKE CARE!!!

  2. So cool:) Can't wait to see him again!!