Nicholas is 8 months old today! It is hard to believe and he is growing up so fast. He is doing so well too. He is smiling all the time and he started blowing raspberries. He is also exploring his legs and I don't think it will be too long before he finds his feet.
We have an evaluation with a speech therapist tomorrow. I asked her what she can do for him now since we know he can't hear. She said that starting therapy early helps for when he has hearing aids or the cochlear implant. He will be used to the therapy sessions so learning to listen and respond will be easier. She also said it will teach us and him how to communicate through eyes and body language. She also recommended we try to get his hearing aid trial started ASAP.
After many phone calls I finally got an appointment at MUSC for another hearing test. The audiologist there told us that the ABR test they did here in Columbia was a shortened test and it only tested at high frequencies. She said that test doesn't test the whole spectrum of hearing and that they should not have told us he is deaf and that our only options are the cochlear implant or sign language. We are going in for a long ABR type test that will test everything. Then once we are done with that we will know if he can hear anything and will do the hearing aids. The test is July 22 and she wants him mad, tired and hungry when we get there. Then the plan is to feed him and let him sleep through the test because she doesn't want to sedate him if it can be avoided.
I got a call from the pediatrician's office on the way home today and we are being referred to a cardiologist. They got the download report of his apnea monitor and it showed 125 bradycardias (drop in heart rate). I think there is something wrong with the monitor because it hasn't gone off and the memory filled up in 4 days when it should take 6 weeks to fill up. We called the home medical equipment people and they are supposed to call us back. We were hoping to get rid of the monitor next week and now I don't know if we can. We will go to the cardiologist just to be safe.