Thursday, March 25, 2010

GI Update and Visitors

Nicholas had an appointment with the GI doctor yesterday. He wasn't concerned that he pulled out his feeding tube since he is getting enough by mouth. He is drinking 15-20 ounces of EleCare and eating 3-4 jars of baby food a day. He is actually eating better since he pulled the tube out. We are to continue with the EleCare and same meds for 2 months then will go back for a checkup. He might let us try something besides the EleCare at that time and will do an ultrasound to check on his gallstone. I hope we can discontinue the EleCare in a few months. It smells horrible and he doesn't like it. We have been adding strawberry syrup to it and I ordered some flavor packs to try. It is also really expensive and not covered by insurance. I'm going to try to order it on Ebay and save a little. He had his last home nursing visit for a weight check. He has gained weight each visit and was 18 pounds on her scale. He was 17 lb. 7 oz at the GI so it is hard to get is actual weight on all these different scales. He is gaining so that is all that really matters. He had PT and OT this week and did great in both. He has been pulling his head up a lot like he is trying to pull up into a sit. Hopefully he will be sitting up soon. Grandma and Grandpa have been visiting from Chicago and Aunt Heather and Uncle John will be here for a visit this weekend. I have a lot of pictures to load onto the computer and will post them soon.

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