Monday, March 9, 2009

Mirror Fun




We bought Nicholas a mirror today and he loved it. He looked at himself and smiled for over an hour before we moved it so he would sleep. They increased his feeds to 68ml every 3 hours and he is still at 3 bottles. The speech therapist said he did poor today. He took 62 ml out of 68 but threw up. She also said he has poor sucking coordination. She said in the past that he has good sucking coordination. She also recommended a swallow study and a G-Tube. He took his whole bottle at 5 and didn't de-sat and if he took just about all of his bottle this morning I would say that is good. So what if he threw some of it up, babies do that. But I'm not a speech therapist. It seems like the speech therapist is giving up on him but when different people feed him he does fine. We will see what his doctor says because we are not happy with this recommendation and do not want a G-Tube.

5 comments:

  1. I don't know much about the sucking coordination, all I see is he is getting a constant feed through the nose in addition to the bottle feeds. He seems to be getting plenty of nurishment. It seems to me he might want to push that bottle away because he's full....

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  2. Nicholas is not constantly fed. He is fed every 3 hours either through his feeding tube or from a bottle. No food is going into him when the tube is not hooked up to the pump.

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  3. Thanks for Clearing that up, Corinne......

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  4. I just want to say that I think Nicholas can sense when someone is holding him that the person may be tired or in a hurry. Since the speech therapist said he was having good sucking movement one day and then the next time she worked with him she said it was bad, then she might have been too anxious or in a hurry and Nicholas sensed that. Or as Corinne has mentioned, she might be giving up on him for whatever her reason could be. Nicholas is very intuned to his surroundings and the people who take care of him.

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  5. That makes me laugh that you had to take the mirrow away :) I knew he would love it!! On the feeding note, we just have to keep trying. It is not uncommon to regress a little. He is and will continue to do things at his own pace.

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